Well, friends, March is Endometriosis Awareness Month so guess what I’m blogging about!
There’s a lot people don’t understand about endometriosis. Most of it can be explained in ways that even someone who has never heard of it can understand. But there is one question I get asked that I just never know how to answer. What does endometriosis feel like?
It’s hard to find an answer to this for a few reasons. One, I have never felt pain like it before, and you probably haven’t either. Two, it varies so much, not only by time of the month but by the day, and sometimes by the minute. Three, the symptoms are so diverse it’s hard to paint a picture of what even a single day feels like.
In hopes of finding even a slightly understandable explanation, we’re going to have to use our immaginations.
Keeping in mind that every person is different, here’s a list of symptoms that I personally experience:
- Pelvic pain
- Back pain
- Pain with bowel movements
- Pain with urination
- Pain with intercourse
- Heavy/irregular bleeding
- Blood clots
- Shoulder pain
- Hip pain
- Temperature control issues
Now, are there likely other issues causing some of these symptoms? Yes. For example, heavy bleeding and clotting is not usually caused by endometriosis but by another related disease called adenomyosis. As well, the pain with intercourse could be caused by pelvic floor dysfunction which has likely been caused by having endo. I include all of these symptoms here because they either helped lead to my diagnosis or only started giving me problems in conjunction with the endo. Unfortunately, there is really no definative way of knowing what else is going on until I get the endo under control.
So, getting back on track. What does it feel like? Here are a few ways I’ve described it in the past, remember you will probably have to use your imagination. Also, keep in mind, many of these feelings are happening at the exact same time in different areas.
Like the worst period cramps you ever had multiplied by at least 10.
Like a horse standing on my pubic bone.
Like someone stabbing me from the inside out.
Like someone is using my organs as exercise balls and just sort of bouncing and rolling around on them.
Like there’s a softball just sitting inside of me.
Like labor contractions.
Like my insides are going to explode and bleed out.
Like the muscles in my back are being torn apart by a lion.
Like the bones in my shoulder are being chiseled away from the inside.
Like I will throw up because I haven’t eaten, but I will also throw up if I do eat.
Like I could faint at nearly any moment.
Like I could sleep literally 20 hours a day and still be tired.
Like my brain is on fire.
Like my uterus is on fire.
Like someone is tapping me on the eyebrow with a hammer, repeatedly.
Like someone occasionally uses a nail gun to shoot through my pelvis.
Like The Hulk is showing his power by squeezing my organs until they nearly burst.